Title

To prospectively study the clinical behaviour, pathological spectrum and outcomes in Paediatric Rare Tumours (PRT)
● Principal Investigator: Dr Maya Prasad

Aim

To study the incidence and epidemiology of specific paediatric Rare Tumours being diagnosed at multiple centres across the country

Eligibility Criteria

● Inclusion Criteria for upfront randomization:

All children less than 18 years of age newly diagnosed with a diagnosis of a Paediatric
Rare Tumour
Informed Consent to participate in study
Children diagnosed/started on treatment elsewhere during the study period and referred for continuation of therapy to the participating centre can be included Cases who have been diagnosed within the study period but are deceased will be eligible.

● Exclusion Criteria:

Absence of conclusive diagnosis, either by histology or molecular diagnostics

Study Outcomes

Treatment outcome: Measured by Event free and overall survival. Events are Tumour progression, relapse, occurrence of second malignancy, or death for any cause.

SITE MAP with 11 Centres